Myasthenia Gravis and Pregnancy

Myasthenia Gravis and Pregnancy

It took us 8 years to get to the point where we could confidently decide to have a baby. Before this, MG had made my health a bit of a rollercoaster ride. From having a thymectomy, three admissions for IVIG and three admissions for Plasma exchange, three different immunosuppressive drugs and a host of other drugs my body had finally got the combination that it needed to stabilise. I was in what I called a drug assisted remission.

After consulting with the Gynecologist and Neurologist and getting the thumbs up we were warned not to get our hopes up for at least a year, given all the trauma my body had gone through.
And then five months later, almost unexpectedly I knew I was pregnant. Confirmed by tests we are now embarking on a new adventure! I will do a series of blogs focused on MG and pregnancy during this exciting and scary time so stay tuned!


Firstly I wanted to share some of the most important facts regarding MG and Pregnancy:

Things to think about as a Mom

- As unique snowflakes, pregnancy affects each pregnant woman differently every pregnancy. Symptoms are noted to worsen for 41% of women with MG, 30% will show no change, and 29% can have a remission of symptoms.

- A worsening of symptoms is most likely to happen in the first trimester or following delivery.

- It is advised that woman with MG delay pregnancy for at least two years following a diagnosis. With the least risk of maternal mortality occurring after 7 years of diagnosis. 

- Mestinon is considered a safe drug during pregnancy. All other medications need to be evaluated by your Gynecologist and Neurologist. 
The birth process:
- Reports do not suggest an increased risk of spontaneous abortions or premature births for women with MG. Preeclampsia is noted as a higher risk factor.
 - Vaginal delivery is recommended for women with MG as the smooth muscles are not affected, however, you may require help towards the end of delivery in terms of forceps or vacuum extraction, as then striated muscles (voluntary muscles) are needed. 
- Cesarian section should be performed only for obstetric indications, as surgery can be stressful for women with MG. However many women opt for C-sections as it is a more controlled environment.    
- Epidurals are still recommended with correct administration and supervision.
Considerations regarding the baby:
- It is possible for infants to develop transient neonatal MG. Statistics noted that this happens 10% to 20% of the time. The baby typically develops symptoms 2 to 4 days after birth, including respiratory problems, muscle weakness, a feeble cry, poor sucking, and ptosis (drooping eyes). This condition usually reverses itself after 3 weeks without complication, due to the mother's antibodies circulating in the babies system declining and the babies immune system taking over. 
- Make sure to choose a hospital with the necessary neonatal care facilities as to get the best immediate care for your bundle of joy.


References: 


Comments

  1. I was one of the people who have a remission of symptoms while pregnant. My neuro kept a close eye on me the whole time.

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    Replies
    1. So glad to hear. Hope you and your baby are still doing well!

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  2. Here for every step of the journey my friend!! X

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  3. Always good to read pregnancy tips as a woman with chronic illnesses..even though I have different ones and don't have a kid myself yet! Congrats and wishing you well!

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    1. Thanks, its an interesting new road to be navigating.

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  4. Hi, great to find you on CIB thread. I've shared your link on PainPalsBLog regular feature "Monday Magic Inspiring Blogs for You!". Will pin, stumble etc and follow your social media, Claire x

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    Replies
    1. Thanks Claire! Yes CIB is a great network. Thanks for the shares!

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